The High Cost of Deafness

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The High Cost of Hearing Loss   When I first lost my hearing, it was frightening and lonely trying to navigate in a world I used to belong to. Everything had changed, from my ability to communicate to employment opportunities to the possibility of returning to college. Years went by and after being welcomed into the Deaf Community after learning ASL, I quickly found out that my hearing loss was to be an expensive existence.   This isn’t to say that I have to pay everything out of pocket. There are some excellent services and advocacy groups that help the Deaf and Hard of Hearing to secure the things they need to increase awareness and function in a hearing world. …

The Best of Both Worlds

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Years ago after I lost my hearing, I couldn’t really enjoy the movies like I wanted to. Trying to follow along with stories just by visual cues was sometimes daunting, though not impossible. Coming from years of movie watching, which I loved, it was heartbreaking to no longer be able to understand what was being said. Going to the movie theater was always an adventure, but now almost became a chore to try to follow along. Scenes would sometimes fly by and I’d only get perhaps part of the gist of the story in broad strokes. I had to study the world all over again. I had to remember voices and sounds and reorient myself in how I followed a …

Our First Annual Community BBQ for Tourette’s Syndrome Awareness Month

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What began as a simple thought became a passion project.   Our second event in the life of this blog was all about spreading awareness of Tourette Syndrome while having fun and meeting others with TS. It was actually through the promotion leading up to the event that we came to know one of the attendees, Madalena.   During our short talks on FB and our Twitter chat with @FlyDuo (along with another prominent guest with Tourette Syndrome), her enthusiasm and genuineness in dispensing information about TS, in general and personally, was refreshing! She was even more engaging in person when we met at the BBQ.   I got there very early and my manager, Mallori, and I set things …

The Most Common Disorders Associated with Tourette’s Syndrome

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Tourette Syndrome, by itself, is a unique disorder consisting of a variety of motor and vocal tics. Many of them within groups of specific types of tics, such as echolalia. The associated, or Comorbid, disorders often affect each patient differently, and, by the nature of these disorders operating on a spectrum, no two Touretters will present identically. In fact, a Touretter may have one or more Comorbid disorders.   However, listed below are some of the most common disorders that are usually associated with Tourette Syndrome that many Tourette sufferers live with. These disorders are called Comorbid disorders.   ADHD (attention deficit hyperactivity disorder): this is one of the most common Comorbid disorders of Tourette Syndrome. Manifesting mostly in childhood, …

8 Great Resources to Learn American Sign Language

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Many people express an interest in learning American Sign Language yet rarely pursue it because of a fear of difficulty or cost.   However, there are many ways one can learn a good deal of ASL alone. For those of us who are deaf/HoH and rely on ASL to communicate and have friends or family members who truly want to learn on their own time, these apps and websites can help tremendously! And it is especially helpful for parents who want to communicate with their toddlers.   Keep in mind that these are only tools and are not a replacement for actual in-person learning, whether through a classroom or a tutor. They can be a supplement for classroom learning but …

5 Myths about Tourette’s Syndrome

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They say that information is the key to battling ignorance.   Over the years, I’ve had to see my share of ignorance run amok when it comes to Tourette Syndrome. So I thought I’d set the record straight. Below are a few myths, half-truths and other things I thought need correcting. Some of these things I’ve spoken about on my Facebook Live broadcasts, some I’ve spoken about here on the site. So I thought: Why not put them all up in one post for all to see at once?   So, without further ado…   5 Myths About Tourette’s Syndrome   ”Isn’t that the thing where you’re swearing all the time?” Contrary to popular belief, less than 5% of people …

Getting Personal: The Tears of a Clown

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Many times, over the years, we come to understand that laughter is the best medicine. It can make us forget our troubles, makes others feel better and can even be good for our actual physical and mental health. But what about when we laugh to keep from crying? Those times when we joke around and laugh to put others at ease but inside we’re hurting?   Sadness, depression and anxiety can take us for an emotional rollercoaster ride that can leave us feeling like nothing is going right; with highs and lows that cannot exactly be quantified with accurate descriptors. It’s a painful and bewildering feeling of hopelessness. Sometimes with no actual cause. It’s a wave that comes over you …

When the Needs of the Few…

Shawn Jackson Deaf And Deaf Culture, Social Issues, Tourette Syndrome 0 Comments

…trump the needs of the many. This is a reversal and slight rewording of a common phrase used to remind the troops that the well-being of the citizens of a country weigh more than their own lives. It’s a rallying phrase that calls to mind the purpose of the Armed Forces to carry on with their gallantry and bravery to self-sacrifice, if need be, for those who sit unknowingly and perhaps worriedly, at home in relative safety. Their uniformed lives and deaths are meant to protect us all. But what happens when the needs of the few, or the well-off, matter more than the needs of many? Trouble looms large in this new administration. From the gutting of the Affordable …