Today, we meet a man from across the pond (England), a reader of this blog and someone who contacted me, saying
Hi all! We’re talking today with Daniel Ferron, the creator of the new documentary “My Life, My Story, My Tourette’s”.
We often empathize with people with who have it rough, but what many of us consider ‘rough’ is usually something like a terminal illness or homelessness. Things easily understandable. But what happens when a close friend or family member is diagnosed with something that isn’t easily understandable?
Depression, as little as it is talked about in general, seems to come with hearing loss and Tourette’s like sweat and exercise. At least some of the time.
Tourette Syndrome is a very difficult condition to get a handle on. From issues of control to where you’re ticcing and how to mask it.
The most famous documentary about Tourette Syndrome is Twist and Shout that’s told from a largely non-personal point of view.
Conference is for Individuals with Tourette Syndrome, Teachers, Educators, Parents, Psychologists, Psychiatrists, Therapists, Social Workers, Counselors, Physicians, Health Care Professionals, Nurse Practitioners and of course the children.
In Tourette Syndrome, there are many symptoms that do not apply to everyone who has it. Some may have echolalia (repeating of another person’s sounds or words) but may not and instead have palilalia (repeating of one’s own words or sounds) like myself.
I felt those pangs as I was losing my hearing over the course of months and those times in High School when I had to be carried out of class because my ticcing had taken over my whole body and I was too loud for the entire school.
This is the first post of this kind. For one Wednesday or Friday, every month, I will post two “Getting Personal” blog posts where I give you all a taste of my personal life. This is to help you all see that, perhaps, you are not alone and that our experiences are not so dissimilar.