It’s been a while since I’ve made a new post for D/T and we’re rearing to go with new content. But for those who are new here, allow me this introduction.
Hi all! We’re talking today with Daniel Ferron, the creator of the new documentary “My Life, My Story, My Tourette’s”.
I’m sure for all fathers-to-be, the prospect of actual fatherhood is both a joyous and scary proposition. As well it should be. But it was fraught, for me, with worries that my son would experience some of the same pains I did by inheriting my Tourette’s or become deaf.
We often empathize with people with who have it rough, but what many of us consider ‘rough’ is usually something like a terminal illness or homelessness. Things easily understandable. But what happens when a close friend or family member is diagnosed with something that isn’t easily understandable?
Depression, as little as it is talked about in general, seems to come with hearing loss and Tourette’s like sweat and exercise. At least some of the time.
Tourette Syndrome is a very difficult condition to get a handle on. From issues of control to where you’re ticcing and how to mask it.
The most famous documentary about Tourette Syndrome is Twist and Shout that’s told from a largely non-personal point of view.
Conference is for Individuals with Tourette Syndrome, Teachers, Educators, Parents, Psychologists, Psychiatrists, Therapists, Social Workers, Counselors, Physicians, Health Care Professionals, Nurse Practitioners and of course the children.
In Tourette Syndrome, there are many symptoms that do not apply to everyone who has it. Some may have echolalia (repeating of another person’s sounds or words) but may not and instead have palilalia (repeating of one’s own words or sounds) like myself.
I felt those pangs as I was losing my hearing over the course of months and those times in High School when I had to be carried out of class because my ticcing had taken over my whole body and I was too loud for the entire school.
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